My writing is shit.

And not “the shit”, even though teens think that stuffing an article in front of a negative word makes it positive. I think my writing sucks. And I’m not writing this to get sympathy or anything, in my mind it’s the truth.

Mostly cos I remember what I’ve written before. I know what I was capable of, in the old days. I’d write amazing articles and interviews and when I read them a few years ago, when I still could read, I was kinda blown away by how good they still were – twenty odd years later.

But that was before chemo brain, and before tularemia and ciprofloxacin, and now most of my brain is mush. On a good day I can read paragraphs and make sense of them. On really bad days, I can read a five word title and recognise the words as words but have no idea what they mean and certainly can’t get them to make sense.

Luckily for me, a wise man once told me that “You don’t need to read to be able to write” and I thank him every day for those words. Cos I don’t – need to read, that is – to be able to write. So to keep my overactive intelligence active I write music reviews for Musikkavisen Puls. Concerts, albums, musicals, movies. I don’t do interviews cos they require more cognitive ability than I have.

Reading press releases is also pretty difficult when most days, a full page of text turns into black spots and letters dancing around the page. Dyslexic friends, frenemies and foes will know what I mean by that. So when I write a review, I usually base it exclusively on how the current music or performance makes me feel.

Just because I can write, doesn’t mean I can write. Some days I have the words lined up perfectly inside my head but they’re not transferable to the keyboard. Some nights I’m on the train back home after an amazing gig, and the review is almost perfect in my mind, but when I get back home to my keyboard it’s all “This was a great gig” and no other words appear.

Having to write in Norwegian doesn’t really help at all. I’m far more eloquent in English than I’ve ever managed to be in Norwegian.

Some days, the excellent days, the rare days, words pour out of me and the only limitation I have is the amount of hours in a day. Other times – I’ll sit at the keyboard and be unable to write a single sentence. Or if I do, it’s in the shape of “this is a good song” or “there are nine songs on this album” and that’s it. That’s all I can write. And re-write. Over and over and over. And this isn’t just a random day, it’s most days, when nothing comes.

While I still thought I had a chance at becoming a scientist, I went to a seminar on “How to write scientific articles” and the important thing which I’ve kept with me since, is “never take a day off writing”. Doesn’t matter if you don’t write anything of importance. Put words on the screen. Delete them if you must, but don’t take a day off.

Sometimes I can go many days without being able to put more than one shite sentence on the screen, delete it, and re-write the same stupid sentence. I can write a useless paragraph and delete the whole thing. I can write an entire article and delete the whole thing. I’ll sit down in front of my computer a score times in one day and not be able to write a single sentence that makes sense or has any value.

I still force myself to sit down in front of the computer a score times a day, even when there are no words buzzing anywhere, and try to type something, anything, regardless of how crap it is on the screen.

Writing keeps me sane. My own bad writing drives me up the walls. Rarely do I manage to write a review I’m proud of but once in a while, I’ll write a love letter. On a good day, 10% of the photographs I take are keepers. That percentage falls to somewhere under 5% when it comes to writing. Which means that if I write 50 reviews in one year, I’m happy if I manage two great ones.

“Why don’t you use AI as an aid to get you going” someone suggested a few years back, when I said I had no idea where to even start. Nope. Not happening. For me, that would be cheating. I don’t care what other people do – but I need my words to be mine. Sometimes it’ll take me a fortnight to review a gig but it’ll be my words and my pics. And I’d rather write a half-assed review that is all mine, than a great one where the starting point wasn’t mine.

My brain doesn’t do well with being handicapped. I need the challenges I can find. I reviewed Lady Gaga cos why not. She actually kinda impressed me. I reviewed Mayhem. I generally don’t understand death and black metal. Challenge accepted.

I don’t always manage to write anything useful. Laibach’s “Alamut” (2025) got the better of me. Busta Rhymes’ “Blockbusta” (2023) annoyed me too much because of all the misogyny and violence.

Sometimes I manage love letters. I’m old enough to fangrrrrrl madly and I’m not ashamed to write those words. Sometimes I think that I am actually able to translate feelings into words, when I get to write about bands such as Seigmen, Neubauten, Munch or Nine Inch Nails.

And Ministry. I’ve crossed the pond twice for Ministry, first for the release of Ministry:Prescripture and second for the Industrial Strength tour so I’VE SEEN MINISTRY LIVE IN CHICAGO!!! and my pictures from the 1996 gig at the Quart festival in Kristiansand are in the most amazing book ever.

Seriously, I don’t care where my photos are used. This was the ultimate bucket list item for me.

But you, as a reader, don’t have to tell me my writing is crap. I already know that. There is no-one on this planet who knows how shite my writing is better than me. I don’t need anyone telling me this. Cos if you do, you make me feel worthless as a person. It takes a thousand positive comments to alleviate the damage of one negative comment and I don’t need that.

I don’t write for you. I write for myself. I write for the bands who make music that I enjoy. I write for the bands who are on their way to making great music. I write for the bands that will, at some point, inspire me to write them a love letter. If you, as a reader, don’t recognise this: go away. I’m not writing for you. I’m writing for me. I’m writing for the dozens of unknown bands out there who deserve to play for a full venue because they’re really great at their genre.

Sometimes I’ll even write about bands that I don’t particularly like, and I might spend hours writing a decent review because my opinion should only be a very small part of a review. I can believe in an artist even if their music isn’t something I particularly enjoy listening to.

I love having this opportunity, this honour, to be allowed to write about amazing music. I love being able to scream THIS BAND IS AMAZING!!! and sometimes people will read my words, and listen to the songs, and find a new favourite band. Or genre. Once in a while a band will reach out and say “We’re awesome, review us please!” and suddenly I have a new favourite band. Lily Löwe is one of them. And I’ve actually managed to keep this photo album on fb updated, at least for now, with all this year’s reviews.

If you don’t like my writing, don’t read it. It’s that easy. I don’t like my writing so I don’t read it. However, I do know that if I stop trying, if I stop reaching for the stars, if I stop writing when my mushy brain is struggling to write the password to my computer, …

…if I give up, if I give in, if I listen to the parts of my brain that scream YOU’RE A SHITE WRITER…

then I’ve lost. So I plod on, with my half decent reviews and love letters and words stuck in my mind and know that for every single review I write, it gets just a smidge easier to write the next one.

I used to have an amazing brain. There isn’t much left of that, but I use the little there is to the best of my abilities, hoping that at some point this will get easier.

But for now? This is me. And it’s all me, no AI, no faking it in any way and if you don’t like it that’s a you-problem.

Chester Bennington

Sometimes I get really sippy.

Sometimes I wonder why I don’t give up.

2025 has been a wall of death. Suicides, cancer, heart issues, cancer, suicide, suicide, suicide…

Chester is my goto. Linkin Park is my goto. When shit gets too heavy, LP.

Chester killed himself. I never got to see him live. I never got the chance to tell him how important he’s been to so many. No-one managed to tell him. So he’s dead, and I’m alive, and I’m still kicking and screaming and staying alive because I owe it to the ones who didn’t make it.

To all we’ve lost: I am sorry we failed you.

 

Just another health scare?

In June I found a small lump in my groin cos it hurt.

I didn’t want to deal with it, attributed it to walking into a tree or falling on my arse or bumping into something stupid and tried to forget about it.

Couldn’t forget about it in September when it started hurting and had grown – massively – and kept growing.

A fun side effect of cancer is that you’re more prone to getting cancer again, and the lovely Tamoxifen that I’m on has cervical cancer as a probably side effect. Fuck, not cancer again???

Couldn’t get hold of my GP so went to the ER and got an ultrasound (I know the drill by now) and tech/doctor says “You need to be referred to oncology”

Still couldn’t get hold of GP so called another doc and said “I need a referral, that’s all I need from you, send me to onco and I’ll be out of your life”

Had a lovely holiday in Lo Pagán, Spain, apart from the fact that I got some kind of weird sun rash – it wasn’t red, didn’t itch, wasn’t a sun burn, just weird blisters which disappeared after 24 hours but came back if I didn’t use sun block.

Got home to a nice visit at haemotology at Ahus. “We’re gonna do some bloodwork and a biopsy and a CT and see where we send you next”

Biopsy first. Fkn stupid surgeon. “I can only see pus, are you sure it isn’t an ingrown hair and sebacous gland?” YES we did an ultrasound so do your work and stop being a fkn twat “ok I’ll see if I can find something”

Date with a doctor at Infectious diseases was nice. “So, we’re pretty sure this isn’t lymphoma but the CT was kinda weird so we’re referring you to a gynecologist also sending off tests to Sweden for Bartonella cos I never get to do that cos it’s expensive but you’ve got the syptoms and we’re also testing you for tularemia because of your tick bites”

She called me last week. I have tularemia – rabbit fever – hare plague (harepest) in Norwegian – from a stupid fkn tick (who are all over me since chemo cos apparently I’m now irresistable). Mortality rate is pretty high in the US but not that bad here in Norway.

“We’re still awaiting some test results but at least we have a cure for that!” so she puts me on ciproflaxin which is a new antibiotic for me and the nice lady at the chemist told me that it could be pretty hard on the stomach so important I eat and take the pills twelve hours apart – as on the dot as possible – and I should really read the instructions.

Most of the instructions are “If you have this side effect, contact a doctor IMMEDIATELY, do not pass GO, do not wait an hour, get your ass to the ER ASAP”

"Ciprofloxacin is a fluoroquinolone (flor-o-KWIN-o-lone) antibiotic, it is used to treat different types of bacterial infections. It is also used to treat people who have been exposed to anthrax or certain types of plague. Ciprofloxacin extended-release is only approved for use in adults.

Fluoroquinolone antibiotics can cause serious or disabling side effects that may not be reversible.

Ciprofloxacin should be used only for infections that cannot be treated with a safer antibiotic.”


Turns out, this is top notch bad shit fucking horrible side effects. Anorexia is a new one for me but it’s actually kinda nice to not eat and not be hungry and not want to eat apart from the whole “you must eat before you take the pills”. I shouldn’t drink coffee (that’s not happening) and insomnia is kinda wild – again – ffs

The worst side effect though is probably the “your mood might turn a bit negative”. Fuck that. These pills are fucking screwing with my head in the worst ways possible. “A bit negative” doesn’t work when you’re as fkd up as I am. My mind is never in any kind of state where it can tolerate “a bit negative” cos I crash completely. If you think I’m ignoring you, I probably am. Not in a good head state right now. Actually in a pretty shitty one. Wrote this yesterday. It’s not pretty so don’t read if you don’t want to.

It’ll pass. It always does. My 80 hour Marshalls are on most of the day cos  I relly need to drown out my screaming brain but Nick Holmes is with me and keeping me kinda sane. Thank fuck for Paradise Lost

Gynecologist was a bit “It doesn’t look right but I’ll take some tests and let you know” so still waiting for results from a few tests. Fuckit.

So, how the fuck are you?

No one asks me that. Ever. A couple people say it but don’t really mean it

I think it’s cos they don’t want to hear “I’m not going driving today cos tunnel walls are too tempting”

They don’t want to hear “I’m exhausted with dragging my ass out of the bottom of hell yet again”

They don’t know that as long as certain people are still breathing, I will continue fighting

Like a fkn cockroach

Prepared to survive armageddon

Again

“May cause mood swings”

Fuck that

“This all is in my head”

Self medication FTW

Paradise Lost/Host are fucking great for surviving that kinda shit

Chemo brain status, 2023

I’ve long since lost count of which year I got cancer and it doesn’t really matter one bit.

This might get long so you really need to listen to Host because I am madly, totally, completely, lovingly hung up on that album. I even did a review of “IX” cos I started writing reviews for puls.no at some point. Host is Nick Holmes and Greg Mackintosh from Paradise Lost and you should really check them out. “Draconian Times” has been stuck in my car for months and months but that’s not what I was going to write about.

Digressions are good.

One of the very last things I did before I decided cancer was a smart move, was participate in a medical study about “Biological predictors in memory” which was SO much fun. We’re talking mere days prior to finding the tumour. Day one was doing easy exercises in an MR machine, basically looking at loads of clip art drawings, part one was answering “Can you eat it?” or “Can you lift it?” and part two was “Have you seen this image before? Do you remember what you were asked if you could do? Were you asked if you could eat or lift it?”

Day two was loads of different tasks. Remembering series of numbers. Repeating them backwards. Remembering loads of items in two different lists, than classifying them and repeating them several times. Weird word pairs to remember. Complex drawing. That kinda stuff. Weight measurements (I think I was a whopping 132 kg then).  

Since then chemo brain has been a massive part of my life but some of the fog has lifted slightly so when I was invited to do a follow up, I jumped at the chance! I figured that my brain is functioning ever so slightly more but this would be a good opportunity to see which parts are still completely non-functioning.

MR was a blast. Full score (except I pushed the wrong button a couple times, but I did that last time, too). Day two: 88 kgs (that’s 44 kgs down). Bp 129/82 which is still really good.

Darn! That’s a third of what I weighed at the time!

Remembering numbers: kindaish, but five digits backwards nope. Long list of different items: first try was a bust, second try slightly better, third try even better, so it seems if I push I can find long lost albeit very fresh memories.

Still not functioning at all: memorising weird word pairs from a screen. I was presented with 36 word pairs (concert fur), was given a piece of paper with one of the words and was supposed to remember the second one. Ladifknhootidah. First round I remembered one pair. Second round, three. Had to draw a complex drawing (I can’t draw for shit) which was fair enough when I had the thingy to look at. Fifteen minutes later, “Please draw it from memory” yup nope, that’s not happening. I got most of the main form and then my mind was blank.

Mimi is really sweet, she’s from Canterbury and she’s going to be massive one day. Remember, you read about it here first!

Anyways. Conclusion from this medical study (and hopefully they’ll let me participate in three years’ time for another follow-up) is that I do well with images. There’s nothing wrong with my eyes or my perception of images. If I saw the image a second time, I always remembered what I’d answered.

Hand-eye coordination when drawing a mirrored image – as expected. Quite normal.

Doing computer games where the object was to remember if the image you were presented with was the same as one you had seen previously, either the last, second last or third last one. That worked, too! Most of the time. I think my “score” was about the same as last time.

Remembering a list of items that I heard – decent. Improved when I heard the list a second time and even better the third time. 

Managing to remember words I read – that’s a big, fat zilch. And I kinda knew that. Reading is still pretty hopeless most days. Good for me is that I don’t need to read and remember to proof read scientific articles and I don’t need to be able to read to write articles!

Conclusion: don’t give me books and expect me to read them. I love looking at the pictures, though!

Biological predictors in memory

One of the last things I did before I got cancer was be part of a study that looked at biological predictors in memory.

I loved it! I was in an MR machine doing tests and then had a memory thingy and what I remember best was that the person doing the memory tests – remembering a set of numbers – was all “I have nothing further for you. Your memory is excellent!”

Since then I’ve been struggling with chemo brain and memory and shit what did I eat today? Did I eat at all?

Then I got an email. “Since you were part of this project we’re inviting you to a follow-up…”

So of course I said YES! I WANT TO JOIN! I WANT TO SEE WHAT BIOLOGICAL DIFFERENCES YOU’VE FOUND!

It took me about a week to find the old emails and realise that I was last tested when the tumour was tiny. It had just started growing. It was minute. It hadn’t figured out what to do yet. So basically, my last shot at this project was days before I found that tumour.

Am I massively excited to be a part of this project and get a chance to see if chemo brain is physical?

YES!!! TOTALLY!!!

And although they’re not looking at this specifically – this might be really interesting since my brain frazzled just after this.

No. I don’t think the testing gave me cancer.

Am I massively stoked for what they might find? That my brain might actually be working better than I think? Or not?

Or that they might actually find something physiological?

OMG this is going to be so much fun!!!

AND I have a new favourite album. Host: “IX”

Do Soundtracks matter?

Five years since I started this journey.

Entering my fifth year with chemo brain, and there is zilch progress so I’m pretty sure I’ll have it forever…

So I still can’t read books or articles or do stuff that requires that I actually use brain power cos it isn’t there. Gone. Useless.

Same applies for listening to audio books or podcasts or radio cos I tend to zone out completely, too much hard work to listen and pay attention and actually enjoy it.

Not that I don’t try, you never know, today might be the day that brain actually pretends to work for more than a zeptosecond at a time.

I was on a road trip with a friend, and he says “Let’s listen to Thomas Seltzer’s podcast” and I thought OK, I can try that, so we turned on the program about 80s music and woohoo! Started off with New Order’s Blue Monday and it took me all of forever to remember who and what it was (tbf I was kinda sure it was New Order but had to search the lyrics to be sure)…

It was a decent show (unfortunately in Norwegian only) and there was plenty of great music – yes, I quite agree, this is a lovely video!

But then he goes on about Michael McDonald and I was thinking I don’t recognise that name, and he plays this:

Not ten minutes before, we’d been talking about the difference between soundtracks then and now. How in the “old days” music was written specifically for a scene or feeling in a specific movie, and if it’s good, it’s perfect and that music will forever bring you back to that scene and that movie.

I’m pretty certain I haven’t heard Sweet Freedom since the 80s. However, it took me probably ten seconds to think “Shit! Movie!” and then everything stopped, except I kept thinking Gregory Hines for some reason (another person I haven’t thought about since the 80s) and suddenly I was thinking about White Nights (1985) which I loved but it didn’t make sense, so I was kinda stuck there so I had to imdb it – and I was just one year wrong. It was used in Running Scared (1986).

I’m impressed. I can’t remember what day it is nor what I had for lunch half an hour ago, I forget names and faces and just about everything – but that one song sent me straight back into a long lost era. I think maybe The Matrix (1999) was the last film where songs can trigger my neurals into happy memories about films. I miss the time when the film industry was all about quality rather than quantity.

Just for the record, since this post is about movies, music and amazing dancers, I’ll finish with this. One can simply never watch it enough.

The good things about chemo brain are…

Have I written this before? I might have. Knowing me, I probably have.

Who cares? I certainly don’t! My blog, my writings, I don’t make people read, I write cos I feel like it.

This is last year’s sunflower cos it’s COLD and there’s SNOW and it’s ICY and WINTER out. I needed some proper colour!

Anyways… it’s World Cancer Day, so I figured I’d do a blog on a positive post-cancer thing.

CHEMO BRAIN!

Some of you have experienced a close-ish relative: Corona brain.

Chemo brain is mostly shit but as this is meant to be a positive blog post, here’s the fun stuff!

  1. You’ll be the best at keeping secrets!
    Mostly because you’ll forget everything anyone says to you within seconds.
    This means that if I’ve forgotten something you told me, it’s not because I find it uninteresting; at the same time, if I actually REMEMBER something I’ve told you – take it as a compliment. It means that my attempts at remembering shit have worked.
  2. You can read all the spoilers you want from your favourite TV show!
    You’ll forget everything, it all disappears into the same vacuum, and you can be quite certain that even if you read that your favourite character dies a horrific death, you can watch it ten minutes later and be SHOCKED by it!!!
  3. Ummm… I’ve forgotten…

In memory of the people we’ve lost so far this year, here’s Ym:stammen.

Words

I know, it’s a cheesy song and video, but… hey, my blog, right?

So – words. When you have cancer, or have survived cancer, (and know someone who died from cancer), you notice what people say. Which words they use. Which words they don’t use.

“I heard about this miracle diet which kills cancer!”

No thanks. I’m not interested in trying to treat cancer with wheat grass or kale or ginger or garlic or cumin or honey or lemon or a cat’s fart. If there was an easy way to treat cancer, without all the side effects – short or long term – don’t you think doctors would use that, instead of almost killing the patient in the process of killing the cancer cells?

This is my favourite cancer meme. https://xkcd.com/1217/

This is my favourite cancer meme. https://xkcd.com/1217/

“S/he lost the battle”

You know what? That’s pretty condescending. People die from cancer. It’s not because they didn’t fight – it’s because cancer is a killer, and for any given reason, medicine is unable to stop it from killing you. It was discovered too late. It was a form that’s kinda untreatable. It had spread to some really necessary organ. You had wheat grass instead of chemo.

No cancer patient decides “Hey, I’m just going to let this alien kill me”. No matter what shape, form or type of cancer, we ALL want to survive it. Saying that someone “lost the battle” as if they didn’t fight hard enough? That’s bullshit. It’s rude. It’s disrespectful. It’s mean. If I die from cancer, and I’d wanted a proper grave, I would have wanted my stone to read “She brought a knife to a gun fight”. Except I don’t want a grave. I want my ashes spread in my forest.

Not asking questions directly

Okay, so I might be a bit more open about my cancer history than others. I talk. I write. It’s one of the reasons I survived this mess. I don’t mind talking about it. I don’t mind being asked questions about it. Hey, if you want to see my scars, feel free to ask me! You can ask me anything and I’ll answer. If I don’t know, I’ll tell you. I’ll probably google it and let you know immediately.

But don’t waste my time being passive-aggressive and expecting me to figure out what information you’re after. I don’t do that.

Feel free to trust me with secrets

One of the good things about chemo brain is that I forget what people tell me – and I forget who tells me what – so I don’t share what I’ve heard with others. Your secrets are safe with me. Mostly cos I forget what you’ve told me three seconds after you tell me. But I do try to remember the important stuff. I do my best to remember the stuff that matters to you, because I know you’re only telling it because you trust me. So… if I forget, it’s not because it doesn’t matter, and if I remember, it’s a compliment. Kinda.

“I have (had) cancer but it’s a secret”

I respect your wish for privacy, but what?

I don’t understand people who keep their diagnosis a secret, at least not breast cancer. I’m sorry. I don’t get it. At some point, it’ll be common knowledge – either because you get the shitty curls from hell (I am SO glad my hair is back to normal and no longer looks like my gran’s perm from the 80s) or because your wig gives it away or because chemo ruins your life and you need months to get back to normal. If you ever get back to normal.

It’s not as if we chose to get cancer. It’s not a life style cancer (unlike lung, stomach, anal or others), and although producing a brood of children early on and breast feeding them for ages might make you less susceptible, there’s no guarantee.

I have a new take on statistics 

Cos guess what? 1 in 7-10 of all women will get breast cancer. Let’s do this easy – and say that 10% of all women get breast cancer. It doesn’t mean squat. It doesn’t mean that there’s a 10% chance of you getting cancer. It means that if you do get breast cancer, you’re part of the unlucky 10%. That – for me as a statistician – is a massive difference.

A friend of mine recently said “You know a lot of people with cancer” and I’ve thought it through – a lot – I can’t remember who said it, but it doesn’t matter. The correct term should have been “You know a lot of people who are honest with you about their diagnosis”. I probably don’t know more people with cancer than you do, but because I’m so open about my diagnosis, some people might feel more comfortable telling me about theirs.

I don’t know.

I just know that you need to check your lemons. <3

“…”

If you don’t know what to say – say that. “I don’t know what to say”. It works just as well with cancer as with death and fire and all kinds of bad stuff happening. “Hey, I heard you got cancer, I have no idea how to respond” IS a response. Silence isn’t. “I have no words” followed by silence isn’t. “Shit babe, I’ve no idea what to say but here’s a crappy meme” is.

Thing is – we all have bad shit happen to us. No-one’s life is perfect, even if it might appear to be so.

And I know you probably haven’t read this far, cos there are so many words… which don’t come easy… but I hope you know that if shit does happen to you, you can trust me.

The lemons

Know your lemons, ladies, and men too.

I found a dimple in my right breast on my birthday, December 21st, 2016. It was suddenly there when I bent over to rinse my hair in the shower. It wasn’t there when I stood up. Bend over, a dimple, stand up straight, nothing.

So I started checking my breasts to see if I could find anything. I couldn’t.

Day one, nothing.

Day two, nothing.

Day three, nothing.

Day eight – a motherfucking mass, the size of a golf ball.

I called my doc.

Christmas holidays so no appointment until January. He sent me straight to the oncologist at Ahus and they found a solid mass, 5 cm across. A week later it had doubled in size. The guy who did the first biopsy said “this doesn’t look good” and I thought no shit, Sherlock.

So…

Even if you no longer like your tits, and think they’re droopy and not as perky as they used to be – know what they feel and look like cos it might save your life.

My right breast became a really lovely perky tit – a tumour the size of a 10 cm unripe orange will do that to you.

So – know your lemons. It’s a pretty awesome site, too.