nine inch nails

Life with a tech savvy kitty

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This is Lea.

Lea is my rescue cat who was hit by a car twice, survived against all odds, and is now the weirdest and cuddliest cat ever. But just to me. She hates just about everyone else.

Lea can take off for weeks at a time, but when she’s home, she prefers being on my lap at all times. Which can be rather challenging if I’m working on my computer and she’s all I WANT CUDDLES. Sometimes she’ll be satisfied with just lying here. If I go somewhere, I have to remember to turn off my computer otherwise she’ll happily chat with anyone listening or update my status on Facebook (best case) or make system changes that aren’t always easy to fix (vertical screen is one of them).

She’s also a kitty with a mind of her own, especially when it comes to music.

As I am now dipping my toes into music journalism again, it means that I have to listen to a lot of different music from my computer. Editing concert photos and listening to new music is a form of multi tasking that kinda works for me.

I’m just not sure how to read her actions on these?

Lea snoring while I edit photos from Ministry @ Vulkan arena last June, listening to Wandering Stars. Or rather, snoring but twitching her tail.

I’ve been tipped off about an interesting Norwegian band called Sølvkre, which kinda reminds me of Nine Inch Nails’ instrumental work. This is Lea’s response to Ghosts.

I left Ghosts on and this is what I came back to. Culprit had hidden.

I am slightly concerned that she’s getting ever closer to cracking the code of net shopping. When I get a parcel in the post, I never know what I’ll find when I pick it up (also because I sometimes order stuff and chemo brain blocks it out so I get surprised by someone sending me a pressie!!!!).

Does your cat order stuff? Is the whole Paypal one touch thingy a really bad idea?

Running on fumes

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I’ve been quiet for a while. Not because I haven’t had any words, but it’s been too hard a struggle.

Going through cancer treatment sucks, but it’s nothing compared to the void after.

You’re not cancer-free. You’ll never be cancer-free. Your body is shit and will never work properly again.

Your mind is fucked-up and if you’re lucky – it may start working again in a few months. Or a decade. Or never. It’s called chemo brain and there’s nothing that can be done to fix it.

So your life sucks. And your friends are gone, cos who wants to hang with a cancer patient. The few good ones stay – cos they’ll always be there – but most of them are gone. And maybe you got some new ones, or revitalised old friendships, cos hey – some people actually are there for you when shit happens.

I see you. I know who’s been there. You know who you are. You’ve kept me alive.

So you walk out the other side of cancer treatment with a couple of new friends and you’ve lost many more. And maybe you realise that family and blood and shit – it’s just a goddamned lie. They can talk about blood all they want but fuck it – I have scars that prove the opposite.

So thank you to those who actually care and keep me alive. The rest can just go to hell. I’m too tired to be polite any more. I have so many battle scars I’m not sure how I stay upright.

Oh yeah, I know.

There are so many people who would dance on my grave, and fuck it if I’ll get them that satisfaction. I’ll be their guilty conscience.

I just wish I had a bit of energy, but fuck it, I’ve been running on fumes for so long that who gives a fuck. I will survive cos FUCK YOU. I have worth. I am a fucking awesome person. I used to be interesting but these days you’ll be lucky if I know which month it is.

And I have music. Thank you Trent Reznor for being the psychotherapist every crazy-ass person needs. Thanks to Al Jourgenson for noize. Thanks to Gary Numan for suddenly being there and being my soundtrack.

So – going to London in June to see NIN at the Royal Albert Hall cos fuck it, I need something good to look forward to. And Gary Numan at Rockefeller in December. Certainly can’t afford NIN but my mind needs it.

And the irony of it all? I don’t think any of my blood relatives actually can be fucked to read this blog.

My name is ruin, my name is vengeance
My name is no one, no one is calling
My name is ruin, my name is heartbreak
My name is loving, but sorrows and darkness
My name is ruin, my name is evil
My name’s a war song, I sing you a new one

Sometimes, my brain screams

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Especially now. It screams at night and it screams in the daytime and it feels like it’s trying to take over my brain.

Not all the time, of course. Just every once in a while it starts shrieking and will not STFU. And it’s a bit like the very first time you wrote a computer program with LOOP in it – at least once you would forget to write END and it would keep going until you shut it down. Sometimes you could even get it to do an exponential core dump (probably the wrong terminology but those of you who’ve played with UNIX know what I mean and the rest of you would have to have it explained) and everything would just screech to a halt veeeeeeeeeeeeeeery slowly and you’d need a complete system reboot.

I think we managed to anger a few sys.admins in the old days.

But I haven’t got a sys.admin to reboot my brain. Sometimes I just need to drown the noise and although it’s much more fun doing it with alcohol, music works just as well.

Noise, pure and simple. Real noise. Sometimes you’ll find the perfect album which won’t leave the cd player for weeks. And sometimes you’ll find that perfect song and let it go on repeat for hours on end.

You weren’t really expecting some major surprise here, were you? These two together – damn. Not often two such greats make each other even better.

Play it LOUD. Drown in the music. Just be. Feel the core dump dissolving. Play it again until your mind feels more at ease. Then play it again cos this is such an awesome piece of music.

The downward spiral

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1

Day 27 after last chemo.

27 days of complete and utter flatigue and an insane heart rate.

Every time I have made a movement, my body has perceived it as having finished a marathon. My entire body has gone all wobbly, heart rate has sky rocketed, and I’ve collapsed onto the closest chair-like object. Regaining control of my body has generally taken shorter time than decreasing my heart rate to something that can vaguely be called ‘normal’.

Life for the past 27 days has mostly been dragging myself from bed to the sofa, watching ancient reruns of Bones, Friends, NCIS and Master Chef (Junior). It’s also been numerous crappy reality shows (pawn shows, designer competitions etc) and Border Security: Australia’s Front Line which is actually kinda interesting/entertaining.

I can’t say how annoyed I was when I – last Sunday, ie day 20 – remembered that I have the dvd box sets of both Buffy and Angel. Coulda binged on them for three weeks instead of crappy daytime tv. At least I now have something fun to watch, as it doesn’t seem as if this flatigue is leaving anytime soon.

My concern has been my heart. An increased HR after exercise is normal – but this has been as far from normal as can be. I yawned and my HR spiked past 140 and stayed there for ten minutes. My normal HR at the hospital has been ca 65. The good thing is that once it passes 130, you don’t actually need to search for a pulse to check – cos your entire body is pounding with blood so you can sit still, close your eyes and just count. Dead easy.

The tricky part is falling asleep when you can feel your heart beating, hard, rhythmically, wondering if this is ever going to end. After a couple of hours of 120+ one tends to give in and take a sleeping pill. It’s weird how the rhythmical noise in a MRI/CT machine sends me to sleep, but my heart making the same kind of noise doesn’t – maybe because something in me is worried for chronic heart problems?

The irony in my mother dying of heart failure when she was 49 – and me now having massive heart problems at 44 – has not escaped me.

The skin on my feet is disintegrating so I got an electric foot file. I can actually pull off large pieces of 3-4 mm thick skin that has just loosened – I know, sounds disgusting – but between removing dead skin, filing, and lathering in massive amounts of lotion, we’re hopefully soon back to something resembling normal.

At least my nails haven’t loosened yet but my eyes are still running.

Massi is back on the road (yay!) so we had an enjoyable trip to the hospital for my next scheduled chemo. I can drive. It’s just the walking to and from car, getting in and out of car, and all that stuff that sends my ticker into a frenzy. At the moment I have three options for getting to the hospital: drive myself, take public transport (out of the question for my immunocompromised body), or be at the mercy of Pasientreiser. Seeing as the early shift take great pleasure in changing orders and sending out cars an hour early, that is no longer an option.

It was when I could shower & get ready in ten minutes. I now need an hour just for showering. So – we drive. The fact that it’s a good 300 m walk from the car park to the hospital should be interesting. Seeing as I normally can manage 10-15 m before collapsing, this will not only be a marathon for me, it’ll be an ultramarathon.

Speaking of which. Chemo brain has run out of power even if heart is pounding on at 130. I love my fake-life. tbc…